Chronic Illness · Meniere's Disease

Why a blog about Chronic Illness?

Artrage watercolor flower

Today I’m starting this blog to talk about my life with chronic illnesses.  It is my hope that it will start a conversation between many people who are in the chronic illness family.

To begin, I’ll tell you what illnesses I have…. more information will come out as we go along I’m sure, and I plan to post a page with definitions for each of these.

  • Meniere’s Disease
  • Bilateral Vestibular Hypofunction
  • Migraines
  • Migraine Associated Vertigo (MAV)
  • Cluster Headaches
  • New Daily persistent Headache (NDPH)
  • Fructose Malabsorption
  • Irritable Bowel Syndrome (IBS)
  • Bipolar I
  • Chronic Pelvic Pain
  • Vaginismus
  • Chronic Hip Pain – left hip replaced in 2015 due to Avascular Necrosis
  • Hypothyroidism
  • Degenerative Arthritis in my neck
  • who knows what else I seem to get a new diagnosis every year of so….. LOL

Now you might ask, why Dizzy Chick says, “What?”  The dizzy come from vertigo and constant disequilibrium, and the “What?” is because I’m deaf with cochlear implants.  I’m often saying, “What?  I don’t understand. I can’t hear you. I need to see your mouth when you talk…”

I live with vertigo attacks that come without warning, and very often, due to Meniere’s Disease, MAV, and from getting cochlear implants.

I lost my hearing because of Meniere’s disease.  It started to go slowly in one ear, then when my Meniere’s went bilateral the hearing loss sped up greatly.  I went bilateral in 2009.  In 2012 I received my first cochlear implant, in 2013 I received my second.

I’m not knew to the blogging world, if you come here and feel you are seeing the same story somewhere else, you might be seeing my other blog,  Picnic with Ants.  I started this blog because I have certain people following me on my other blog that I don’t feel I comfortable knowing everything about me.  Here I plan to tell it all.

Welcome, I hope you will keep me company on my journey.

 

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5 thoughts on “Why a blog about Chronic Illness?

  1. I love that you’re doing this and raising awareness of “invisible” illness. I don’t know how many times someone has said “your husband looks fine” to me when I tell them he has Ménière’s. Good luck with your journey. I hope your blog connects you to people who want to have a conversation about feeling better.

  2. I finally got over here to support this blog as well as Picnic . . . You know I’m t-totally behind you as you move into this endeavor, and will link here when I can to help you build some numbers – I’m probably your biggest fan. Onward and upward,
    xx,
    mgh
    (Madelyn Griffith-Haynie – ADDandSoMuchMore dot com)
    – ADD Coach Training Field founder; ADD Coaching co-founder –
    “It takes a village to educate a world!”

    1. My dear friend, thank you. I don’t need numbers here and don’t know if I can keep up with 2 blogs much longer. I just needed a place to blow off steam. A place where no one knows my name..LOL I don’t want to say some of these things on Picnic with Ants because it’s more gut wrenching. Yet every time I post I think, I should have just said it. But no. Not about abuse, or roommate, or stinky therapist… I don’t know if I’ll post here a lot, but when I do, I say things from deep in the gut.

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